This is What ObamaCare Has Done For Me, What Has It Done For You?

Dear Spoonies*, Loved Ones of Spoonies, or People Who Just Kinda Give a Shit,

I have a mission for you.

It’s happened. Donald Trump is our president-elect, there will be a Republican majority in the House and Senate and an open vacancy in the Supreme Court.

Our health care is at risk.

If you’re like me, you’ve spent the last two years hearing Republicans promise to “repeal ObamaCare Day One” with a churning stomach. Not that churning stomachs are out of the norm for a lot of us. We’re the chronically ill, and nausea is often a part of the package deal. But this was a different sort of nausea.

This was fear.

Fear that the items in this new law that literally save our lives —  the pre-existing condition clause, the ban on lifetime and annual caps, the requirements for increased mental health coverage, etc — will be whisked away in a cloud of partisan dust in the political tug of war that often feels like it’s more about one team winning and less about the lives they represent.

I can honestly understand how that happens. When there are people whose job it is to literally “whip” congressmen into the party line (who consequently control their funding), it’s easier to remember the demands of your colleagues than the demands of your constituents.

So if we want the parts of the Affordable Care Act (which is the same thing as ObamaCare, in case anyone was confused about that, further referred to in this article as “ACA”) that are so vital to our continued prosperity and livelihoods to remain intact, we have to make it personal. We have to tell our stories and help our representatives understand the real consequences if they fail to replace the ACA with a substantive measure that protects its disabled citizens.

I’ll go first. [Read more…]

An Open Letter to the Cast of Hamilton (cuz that’s what the kids do these days)

I know, I know, I promised my next post would be a funny story at my own expense involving zebra hickeys and embarrassing pictures. And I will get to that, because I built this site in hopes of helping out my fellow spoonies, and I will remember my target audience in all future posts. But today I’m going to be a bit selfish and use this lovely wordpress platform to thank a group of people who literally made a dream come true.

Dear Cast of Hamilton, [Read more…]