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March 9, 2015

Reading Through the Brain Shmergh — I mean Brain Fog

Brain Fog. You know it. You love it. That thing that makes simple words like “display” or “benefit” impossible to reach (those were two words I needed help to say yesterday). That thing that makes you stare blankly at your phone for several minutes before you realize you picked it up because somebody asked you the date.

Brain fog usually accompanies other pleasant symptoms that make you seek recluse in bed…which can get seriously boring. There is only so much TV a person can watch before they start to feel their eyes melting. As a lifelong bookworm, I’ve really regretted how little I’ve been able to read since I’ve been sick. It takes energy and mental wherewithal that the spoonie life just doesn’t always allow for. So I’ve discovered a few hints and tricks to allow me to read despite major brain adfkljadfaf-ness. [Read more…]

Article by Leah Holstein / Everyday Life / brain fog, reading 3 Comments

February 26, 2015

Feeding Tube Vlogs #4: Coming Home With the Tube

See all the vlogs!

Next vlog coming soon to an internet near you!

TRANSCRIPT BELOW THE FOLD

[Read more…]

Article by Leah Holstein / Medical Devices / feeding tube Leave a Comment

February 24, 2015

Invisibly Ill: An Awareness Plea

“You’re one of the stable patients,” they said
As they kicked her to a dingy corner of the hospital.
With the other “stable” patients.
No space. No privacy.
No dignity.
But hey, at least she wasn’t dying.
She waited months for a specialist appointment.
Because she was stable.
Couldn’t work. Couldn’t read. Couldn’t eat if not for the tube in her side.
Couldn’t lift her head.
But she didn’t look sick.
If you ignored the puffy lines on her face
The way she always looked for a place to sit
The look of defeat in her eyes.
But hey, at least she wasn’t dying.

But what, may I ask, is dying?
Because I don’t think this is living.
Laying in bed.
Staring at the TV, but not really watching.
Sorting pills.
Scrolling through tumblr and twitter
Just to know there are others like me.
Making plans
I can never seem to keep.
I’m not living. And what is the opposite of living? [Read more…]

Article by Leah Holstein / Emotional Coping / awareness 5 Comments

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None of the opinions or experiences expressed on this site is professional medical advice tailored to your own situation. Please consult a medical professional before making any changes to your health management plan.

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