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January 16, 2015

Surviving the Tilt Table Test

Oy. This one was rough.

Good news, though, this test is really only rough if you actually have the condition. Should a healthy person take this test, it’d most likely be pretty mundane.

Unfortunately, unlike the CT scan, I don’t really have any tips. I just thought I’d give you a run down of what the test was like, sans medical talk, so you can know what to expect going in.

The only prep instructions they’ll give you are to fast for six hours before (that includes stopping J-Tube feeds, too, apparently) and to make sure you have a ride home, because you will feel a bit wonky afterwards.

The first part is your basic outpatient prep stuff. Here’s your hospital gown that is designed for a 300 lb man, have fun trying to cover yourself in this 30 degree room.

[Read more…]

Article by Leah Holstein / Diagnostic Experiences, Hospital Experiences 4 Comments

December 24, 2014

Feeding Tube Vlog #2: Deciding to Get the Tube


Transcript below the fold:

See all the vlogs!

See only the next vlog!

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Article by Leah Holstein / Medical Devices / feeding tube

December 14, 2014

Mobility

(Adapted from “When is it time to upgrade?” by Tumblr user imzadde*)

Depending on the condition(s) you’re dealing with, you may find yourself in need of a mobility aid. This is a big step from an emotional standpoint, as it requires admitting to yourself that you need help. It may also be difficult to go out with a visible medical device. However, a lot of spoonies say that they’re glad to have their mobility device—both for what it does for them, and for how it works as a signal to others that they have special needs.

Since we’re young and not expected to end up with mobility devices, it can be hard to determine when it’s time to start using one. There isn’t a simple answer to this question. It really depends on your needs and comfort levels, and it’s an entirely personal choice; that is, if you feel like it’ll be useful to you, don’t let anyone tell you otherwise.

Screen Shot 2014-12-14 at 12.15.17 PM

[Read more…]

Article by Leah Holstein / Medical Devices / canes, rollators, walkers, wheelchairs

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None of the opinions or experiences expressed on this site is professional medical advice tailored to your own situation. Please consult a medical professional before making any changes to your health management plan.

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